One of those days...

Its been a funny old day so I thought I would put on a couple of nice photos before explaining why... The top picture was taken after Emma and Meg were let loose with the face paints and the 2nd one was at the Roller disco at the O2. Lots of fun!!

Emma has been doing so well post transplant that it came as a real shock on Friday when I was rung to say her creatinine had gone up. Before transplant the creatinine level was the marker for when she would need dialysis and the op as it is a sign of kidney failure. It is very hard to keep it all into perspective. The hospital tried so hard to reassure me that it was probably just a bug inside her that was making the level increase temporarily- just as it probably had in Meg and Greg, just that we wouldn't know as they are not checked every two weeks.

Anyway I had to take her back today for repeat bloods and an ultrasound on the kidney. They were sent as urgent and we then had 30 minutes to wait to hear if the level had gone down- a sign that it was a bug, or that it had gone up- a sign of rejection.

Thankfully it had gone down, what an unbelievable relief. This is going to happen a lot- all part of the rollercoaster ride we have now been on for 2 years. Am glad to have got the first time over with.

SO its back to school tomorrow for all 3. We have had a lovely relaxing Easter. Seeing lots of friends and family and generally not trying to do too much. Happy days!!

Happy Easter

The last time we were at the O2 Emma had just started on dialysis. GOSH got us tickets to see Disney Princesses on ice- a fantastic day. 5 months later we were there for the boys to watch.... Star Wars in Concert!!

They had a great time alongside many hundred other fans while me and my girlies had our own fun...... at the roller disco!!

They both loved it, Emma in particular being a star. I was quite relieved when they had had enough after about 20 minutes as I hadn't admitted to her surgery when we signed up!! I also then had a chance to have 10 minutes on my own strutting my stuff while they sat and watched in amusement! Such fun.

Emma's kidneys are still being well behaved. I say kidneys as her other 2 are still inside her hanging on in there alongside their new friend. It's just a shame that her ankles and knees are causing her such pain as her new kidney gives her more energy but her joints put paid to anything too energetic. Boo.

Happy Easter to everyone. Emma still has to keep her phosphate levels up so is chomping her way through her milk chocolate eggs happy knowing its doctors orders!!