Today a great big lorry pulled up outside our house and took away all the dialysis equipment! Much happiness at this momentous occassion.
Not much else to add on this exciting post. We now have space in the garage and Al no longer has an excuse not to go on the rowing machine!!
Thursday, 18 March 2010
Saturday, 13 March 2010
Emma is 9!
When the transplant date was first talked about back in October Emma announced she didn't want it near her birthday.
So a very happy Emma celebrated her 9th birthday at home with a well behaved 38 year old kidney still doing a fab job inside her. Hurray!!
Tuesday, 9 March 2010
Master Greg is 7
2 days late I know... but just to say Greg had a fab 7th birthday! In a nutshell- star wars, lego, kidsworld (Yuk!), cake, Roast dinner (thanks Nanny). Greg's 'perfect day!'
Wednesday, 3 March 2010
Surprise!!
'Hello' to all the die-hard blog readers!! Sorry it's been a while since I have written. No excuse really! Well it's now birthday season in the Beeden house and these pictures were taken on Meggies 5th birthday last Sunday.
Things are going ok. Emma is back at school full time and is also enjoying being back at Brownies, swimming and ballet. She really is quite amazing. She also has her 'grown-up' bedroom at last! Thanks to Nanny and Grandad and their professional wallpapering skills!
Next GOSH visit will hopefully be on the 11th- 2 weeks after the last one, our record so far.... They are really pleased with her results but still want to keep a close check on her.
Will blog again on 7th March when a certain young jedi turns 7!!
Saturday, 13 February 2010
swim swim swim
Just to let you know Emma seems to have recovered from her bug. Her bloods on Thursday were a little wonky after her being sick so we have to go back again on Tuesday.
Reached a milestone this morning when all 3 children walked back through the doors of Polam for their swimming lesson with Su. Now, my children will never be olympic swimmers but I tell you I couldn't be more proud of them- they have all screamed, shouted and refused to swim in the past but thanks to their fantastic swimming teachers- especially Adrienne, Su and Aoife, they now happily go and always do their best.
So todays blog is in memory of the wonderful Adrienne who taught Meggie, Greg and Emma from 12 weeks old till they became tadpoles with Su, who now I am so lucky to also have as one of my amazingly supportive friends.
Reached a milestone this morning when all 3 children walked back through the doors of Polam for their swimming lesson with Su. Now, my children will never be olympic swimmers but I tell you I couldn't be more proud of them- they have all screamed, shouted and refused to swim in the past but thanks to their fantastic swimming teachers- especially Adrienne, Su and Aoife, they now happily go and always do their best.
So todays blog is in memory of the wonderful Adrienne who taught Meggie, Greg and Emma from 12 weeks old till they became tadpoles with Su, who now I am so lucky to also have as one of my amazingly supportive friends.
Thursday, 11 February 2010
Yawn!!!
I managed to stay awake till 4:30am and then set the alarm for 5 and 5:30. After that I must have fallen into a deep sleep as woke again at 7:30! Emma woke up remarkably cheerful and had kept all the liquid and tablets down that I had been force-feeding her through the night! Phew..
So on 2hrs sleep we trotted off to London. The doctor checked her over and had her blood pressure taken 3 times- it was very low for Emma, most unusual. Bloods were taken and then we were sent off with strict instructions to ring if ill again. We then had an appointment to get her school shoes from the fab orthoptic department. But surprise, surprise they didn't fit and she found the new insoles very stiff and uncomfortable. As you can imagine she wasn't best pleased and made sure I knew it! Ho hum....
As we were leaving we... I mean 'I' was very excited to see Michael MacIntyre walking down the road. Emma refused to stalk him with me for a photo so instead we jumped into a taxi and headed home.
As far as I know the bloods were ok. The doc rang but just to check Emma still feeling OK. I should have asked but sometimes am too scared to ask in case they are aren't as good as last time.
Greg went off to the school disco this evening. Emma had to miss because of bug and she was also scared in case her side was knocked.
Nothing can stop us from being incredibly thankful that all has gone well (so far) but to Emma its missing school discos, class trips, Brownie weekends, swimming, ballet etc that really make her fed up and there is nothing anyone can do about it. It's simply not fair....
So on 2hrs sleep we trotted off to London. The doctor checked her over and had her blood pressure taken 3 times- it was very low for Emma, most unusual. Bloods were taken and then we were sent off with strict instructions to ring if ill again. We then had an appointment to get her school shoes from the fab orthoptic department. But surprise, surprise they didn't fit and she found the new insoles very stiff and uncomfortable. As you can imagine she wasn't best pleased and made sure I knew it! Ho hum....
As we were leaving we... I mean 'I' was very excited to see Michael MacIntyre walking down the road. Emma refused to stalk him with me for a photo so instead we jumped into a taxi and headed home.
As far as I know the bloods were ok. The doc rang but just to check Emma still feeling OK. I should have asked but sometimes am too scared to ask in case they are aren't as good as last time.
Greg went off to the school disco this evening. Emma had to miss because of bug and she was also scared in case her side was knocked.
Nothing can stop us from being incredibly thankful that all has gone well (so far) but to Emma its missing school discos, class trips, Brownie weekends, swimming, ballet etc that really make her fed up and there is nothing anyone can do about it. It's simply not fair....
One of those days.
Hello all!
Have had one of those crazy days so thought I would update the blog to let you all know about it! At the moment me and Emma are in my bed, Emma sleeping soundly and me trying desperately to stay awake! At 8pm Emma decided to throw-up. BOO!! Its a bug- hot, cold, sick, miserable etc. I rang GOSH who told me to ring back if sick again. hour later... sick again. Was then given the option of going to Bedford hospital and being put on a drip or making her drink 50-75mls of water every half an hour all through the night! SO here I am, 2:10am doing the latter! Emma sleeps through and then opens her mouth for the drinking straw and tablet. She hasn't been sick since 9pm now, but there is still a lot of night to get through.
I have really enjoyed chatting to anyone who is awake round the world including an old school friend Tom in Australia, my wonderful teaching pal Kathy in New Zealand and Terrie my American cousin!
We are off to GOSH in the morning, so hope Emma is feeling up to it as has to go.
Before all this happened Al had his long awaited finger surgery. Al has dupuytren contracture/disease (AKA bent finger disease!) He came home with a very impressive bandage and splint and has to keep the arm elevated till Friday when he is seeing a physio. Sadly his other hand is also affected so has to repeat it all again in a few months time.
Its now 2:38am. Only 5 hours to go!!
byeee
Have had one of those crazy days so thought I would update the blog to let you all know about it! At the moment me and Emma are in my bed, Emma sleeping soundly and me trying desperately to stay awake! At 8pm Emma decided to throw-up. BOO!! Its a bug- hot, cold, sick, miserable etc. I rang GOSH who told me to ring back if sick again. hour later... sick again. Was then given the option of going to Bedford hospital and being put on a drip or making her drink 50-75mls of water every half an hour all through the night! SO here I am, 2:10am doing the latter! Emma sleeps through and then opens her mouth for the drinking straw and tablet. She hasn't been sick since 9pm now, but there is still a lot of night to get through.
I have really enjoyed chatting to anyone who is awake round the world including an old school friend Tom in Australia, my wonderful teaching pal Kathy in New Zealand and Terrie my American cousin!
We are off to GOSH in the morning, so hope Emma is feeling up to it as has to go.
Before all this happened Al had his long awaited finger surgery. Al has dupuytren contracture/disease (AKA bent finger disease!) He came home with a very impressive bandage and splint and has to keep the arm elevated till Friday when he is seeing a physio. Sadly his other hand is also affected so has to repeat it all again in a few months time.
Its now 2:38am. Only 5 hours to go!!
byeee
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