It's snowing. Not settling

It is snowing but not settling. We are back in our flat. I have quite a sore tummy.

Love Emma

no plastic- fantastic!

Just a quickie to say today has gone ok. Both tubes out. Having to stay one night which we were hoping to avoid but her bp a bit low so need to keep an eye on it due to medication. I am quite happy staying as it is ressuring for me but Emma made it perfectly clear that it wasn't in her plan!!
Al, Meggie and Greg have gone back to Oakley. They will hopefully do 3 days then back here for the weekend. Alistair is also hoping to go to work on Thursday and Friday, They have been fantastically supportive of all of us- Thank you Life Plus!
Back tomorrow, after a lovely comfy night on a chair!!
Katy

Patient hotel.... the return

Grandpa took this photo on the glass floor at the British Museum yesterday- all the amazing things for them to look at there and this is always their favourite part!

Well today we moved back to the room we were in before the Italian Wing. It felt a bit wierd for me as I remembered how yuck I felt in it before! That was soon forgotten when the kids announced how much they loved it! It is bigger than the last one and the kitchen is much better equipped. Me and Emma are now sharing a room which I have been so looking forward to. The plan was that Al was going to take Meg and Greg home tonight but they were having so much fun in their new flat that I couldnt bring myself to send them. So one more day with us and then back to school... unless it snows of course!

Tonight I did my last clean of Emmas dialysis site. Eugh!! Its coming out tomorrow. Yippee! We are all a bit nervous about it, but it should be quite a quick op. I hate taking her to theatre but its my turn after Al did it for the big one- 3 weeks ago! Can you believe it??!!

Emma was most excited to paint my nails tonight. I havent been able to paint them since dialysis started as had to be hyper clean with surgical scrub. So they are now a fetching green with orange and blue dots!

Well Meggie has now joined me in my lovely single bed so I had better try and persuade her to go to sleep.

Much love Katy

Emma's Day

Hello I'm feeling fine today. I had a day of from GOSH today. My cousins David and Georgia
came to see us in our flat. Tomorrow we are moving to a new flat.

From Emma

treasure and pizza

Have had a lovely day with Grandpa. We went along to the British Museum which is literally a 10 minutes walk away. It was great to see the items found in the Staffordshire Hoard which only arrived at the Museum this week. We then did our normal round of the Romans, the Egyptians, the glass floor and of course the gift shop.
We even enjoyed lunch at Pizza Express- thank you Tesco vouchers!! Emma tucked into pizza and ice-cream and guess what??? She wasn't sick- hurray!!
The doctor who saw Emma this morning at 8:30 then rang to change one of her medications and told us..... we don't have to go in tomorrow! we have a day off! I didn't really want to tell you all in case I jinx it again! Great news though.
I am feeling better today. Will still ring Guys on Monday though. My scars look fab but it feels a bit wierd inside. Back on the painkillers for a bit me thinks.
Its the penultimate night in our Italian pad. Am quite sad in a funny kind of way. We will be back in our patient hotel room which is just round the corner. How amazing is it that we have all been put up in an amazing flat, 2 minutes walk from the hospital? You won't ever hear me criticising the NHS I tell you!
Lots of Love
Katy , Al, Emma, Greg and Moo

For Nanny and Jill!

Emma took these pictures at the British Museum today specially for you both! Beadtastic!!

Emma is dancing!

What a wonderful sight for us - seeing Emma dancing to the videos on MTV. She must be feeling so much better!
Walked to covent garden with Nanny and grandad this afternoon. Emma complained the cobbles were a bit bumpy in the wheelchair but she was still happy to be out and about.
Daddy took her across to hospital this morning as I am not feeling 100%. My stomach has become quite tender so will ring the ward at Guys if it doesn't improve. Am also very tired but know I am not sleeping enough as its hard to get comfy. Still its all so worth it to see Emma dancing round the flat- she is so amazing!!