Our new arrivals- NO Storm's allowed!

It's funny when I look at my lovely long awaited sofa and 'snuggler' (not exactly impressed with the 14 week wait Mr Lewis!) as when we ordered them Emma and me said how when we sat on them the operation would be over. I don't think from the day we were first told Emma would one day need a transplant did I ever actually believe them. But they were right and it did happen. Strange and not sure unless you have been through it like we have that you can really get what I am wittering about!

Ok day at GOSH. Another tacrolinus tinker. Doc very happy with her and permission given to return to school on Monday. Will take it slowly though. Aiming to perhaps be full time after half term. Emma also had an appointment with the orthotist today which was very successful and she will hopefully be just as keen when her new school shoes arrive made beautifully to fit her feet in 2 weeks time.

Arrived back in our VW passatt at 2:30 (not sure what happened to the Jags, merc's and BMW's!) to a DLA (disability living allowance) letter on our doorstep. Anyone who has applied for DLA will understand my complete frustration at the whole system. before dialysis- which started on 8th Oct she was on lower rate but once her care increased due to dialysis we were told she was entitled to higher rate. So nearly 4 months later the decision arrived..... yes she could have it but only from 8th Jan. GRRRRRRRRRRRRRR. So now I have the hassle of having to appeal- again. Harumph!

Going to stay with Baz, Shell and max for weekend. And all we need to take is a bag full of drugs! No dialysis machine, no fluids, no tubes, plasters, sterile wipes, swabs, caps, weighing scales, commode, blood pressure machine, sample bags, thermometers etc etc etc.

Living with a child with a transplanted kidney brings lots and lots of worries but not as much baggage as one on dialysis! Not easy but loving it that its going well and docs all happy.

Love a very comfortable katy!